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NF Smarty Pants

A collection of the latest news, events, and information about Neurofibromatosis
June 29th, 2010

Karen Peluso Interviewed in Boston Herald

Karen Peluso, executive director of NF, Inc. Northeast, was interviewed by the Boston Herald about the state of NF support and research in her area.

June 28th, 2010

Former Boston Red Sox Dwight Evans Shares Family History

Dwight “Dewey” Evans, former Boston Red Sox standout, shares the medical history that he and his family have kept out of the limelight for so long.

April 19th, 2010

April 24: Jeans for Genes Dinner and Auction (Victoria, BC, Canada)

The British Columbia NF Foundation is holding their Jeans for Genes fundraiser this Saturday.

April 16th, 2010

NF Endurance Team Members at the Boston Marathon

John Wesolowski and daughter AnnMarie will run the Boston Marathon as part of the NF Endurance Team and in honor of Celia LaBarbera.

April 15th, 2010

The Hay Family Seeks to Raise Awareness in Australia

Charlie Hay and his parents realized after his diagnosis that most of Australia’s NF support seems to be centered in Sydney. The family hopes to start organizing and raising awareness closer to home. Strathfieldsaye, Australia, is closer to the city of Victoria in the southeast.

April 14th, 2010

Running a Marathon in Antarctica

The NFXtreme Team is back from their trek to, and over 26 miles of, Antarctica.

April 13th, 2010

Jessica Stone Continues to Battle NF

Challenges continue to arise for Jessica Stone. Follow Jessica’s journey through her own blog, Life Inspires Me.

March 4th, 2010

March 13: St. Patrick’s Day Parade in Naperville, IL

NF, Inc. Midwest is marching in the West Suburban St. Patrick’s Day Parade. Please let them know if you would like to join them.

February 27th, 2010

Tonderai Mandigumura Ready to Head Home

Tonderai Mandigumura traveled from Zimbabwe to Minnesota to receive surgeries that he couldn’t have in his home country. St. Joseph’s Hospital donated services made everything possible. Now, he’s ready to head home.

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February 25th, 2010

The NF Extreme Team To Marathon in Antarctica

Would you run 26 miles in Antarctica? The NFXtreme Team will.