NF, Inc. Midwest’s Great Steps for NF is proving to be a very popular fundraising model. The original event began in Naperville, IL, and grew to include a second charity walk in Effingham, IL. Now organizers in Madison, WI, want to add onto the tradition.
If you are in the Madison area and would like to get involved, please contact the main office of NF, Inc. Midwest.
Kyle Dobbins is legally blind due to his NF. Scientists in China are using a procedure involving stem cells to restore sight. Read more details from KGET.
Led by the Genetics Department of the University of Birmingham, researchers found that NF1 and Legius syndrome have very similar symptoms, which may lead to misdiagnosis.
Lisa Nancarrow has a painful and deadly tumor in her abdomen. Her Ontario doctors are out of options. Lisa struggles against her country’s health care system to receive care at the Mayo Clinic in Minnesota.
The Canadian Press has a nice, lengthly educational article on NF.
A group of scientists studying mummies have determined and diagnosed a wide range of maladies. One ancient Egyptian is likely to have had NF. The disease is likely the cause of death.
Instead of getting the usual presents at his bar mitzvah, Aaron Posner will raise money for NF research. He is asking for donations to the Washington University Neurofibromatosis Center in St. Louis.
University of Central Florida professor and researcher Cristina Fernandez-Valle has just been awarded two grants from the National Institutes of Health. Click on the first link to learn more about her from the school’s announcement.
Scientists at UCLA’s Jonsson Comprehensive Cancer Center announced that their research have determined that the tumor suppression gene PTEN plays a role in the turning of benign neurofibromas into malignant tumors. This finding allows researchers to focus on drug therapies to control the affected pathways and prevent future cancerous transformations.
NF, Inc. Midwest’s annual symposium takes place at a new location this year. A large number of experts will be on hand to share their knowledge and the latest in research. There are special break-outs focusing on issues related to teens and NF2. See the pdf brochure here.
