NF Smarty Pants

Archive for the ‘Uncategorized’ Category

Thank you, Diana Haberkamp of NF, Inc. Midwest, for letting me know that this site was hacked. I hope no one was spirited away to somewhere really gross. I believe I have cleared the malicious code, and I hope everything is back to normal now.

A group of scientists studying mummies have determined and diagnosed a wide range of maladies. One ancient Egyptian is likely to have had NF. The disease is likely the cause of death.

It looks like we may be broadcasting again.

NF Smarty Pants is having some trouble with the RSS feed for some reason. If you signed up to receive content through emails, you may not have received the posts of the most recent days.

The Senate has approved Dr. Francis Collins to be the new Director for the National Institutes of Health.

Lucie Macfarlane would like to see marijuana legalized as a medical option for the pain from her NF tumors and spinal problems. The Southtown Star covers the most recently proposed Illinois Senate bill.

Dining Out In Dallas is the Texas Neurofibromatosis Foundation’s signature event. Since 1995, Dallas’s top chefs have come together to support NF research and services.

Bill Simonson believes the Big East is overrated in the rankings for the NCAA Basketball Tournament. He thinks the Big Ten teams will win more games than the Big East teams overall.

And, as he says, he’s willing to put his money where his mouth is. From his article:

I challenge people to take sides in this battle of the Big East and the Big Ten. Pick a side, pick which conference will win more games. If you lose, please make a donation in your name to the fight against neurofibromatosis.

Click on his name above to read the entire article.

Coast Mental Health, a Vancouver-based mental health organization, is seeking nominations for its Courage to Come Back Award. The deadline for submissions is February 16.

In 2006, Jeneece Edroff, now 14, won the award for being a tireless fundraiser despite battling serious effects from her NF.

I hope you all had a great holiday season. May 2009 be filled with joyful news and important advancements in NF-research.