NF Smarty Pants » Support http://nf.smartypantsknowitall.com A collection of the latest news, events, and information about Neurofibromatosis Thu, 09 Dec 2010 02:31:26 +0000 http://wordpress.org/?v=2.8.6 en hourly 1 AmTrykes, Bicycles for Mobility Challenged Riders http://nf.smartypantsknowitall.com/2010/12/05/amtrykes-bicycles-for-mobility-challenged-riders/ http://nf.smartypantsknowitall.com/2010/12/05/amtrykes-bicycles-for-mobility-challenged-riders/#comments Sun, 05 Dec 2010 14:25:57 +0000 M http://nf.smartypantsknowitall.com/?p=794 AmTrykes are modified bicycles from AMBUCS, an organization dedicated to creating mobility and independence for people with disabilities. This December, they are soliciting donations to provide free AmTrykes to over 450 people on their wish list.

Silas Martin of Decatur, Illinois, received one of these vehicles.

]]> http://nf.smartypantsknowitall.com/2010/12/05/amtrykes-bicycles-for-mobility-challenged-riders/feed/ 0 Support Group Forms in Victoria, Australia http://nf.smartypantsknowitall.com/2010/12/01/support-group-forms-in-victoria-australia/ http://nf.smartypantsknowitall.com/2010/12/01/support-group-forms-in-victoria-australia/#comments Thu, 02 Dec 2010 02:07:29 +0000 M http://nf.smartypantsknowitall.com/?p=788 The Hay Family is starting a support group in the city of Bendigo in Australia. This is reportedly the first NF support group for the Victoria area of the country.

Their first gathering is a picnic on December 12. Contact information is available at the end of the linked news story.

]]> http://nf.smartypantsknowitall.com/2010/12/01/support-group-forms-in-victoria-australia/feed/ 0 Parents Advising Parents http://nf.smartypantsknowitall.com/2009/09/29/parents-advising-parents/ http://nf.smartypantsknowitall.com/2009/09/29/parents-advising-parents/#comments Tue, 29 Sep 2009 17:43:27 +0000 M http://nf.smartypantsknowitall.com/?p=664 The Cape Cod Times features an article about the lessons to be learned from parents of children with chronic illnesses.

]]> http://nf.smartypantsknowitall.com/2009/09/29/parents-advising-parents/feed/ 0 Team Izzy of Michigan http://nf.smartypantsknowitall.com/2009/09/15/team-izzy-of-michigan/ http://nf.smartypantsknowitall.com/2009/09/15/team-izzy-of-michigan/#comments Tue, 15 Sep 2009 15:55:01 +0000 M http://nf.smartypantsknowitall.com/?p=645 Team Izzy organized as a way to support each other, raise funds for NF research, and increase NF awareness. The group is named after 3-year-old Isobelle Mick. The Kalamazoo Gazette has a nice story on the family and their efforts.

]]> http://nf.smartypantsknowitall.com/2009/09/15/team-izzy-of-michigan/feed/ 0 Zoe’s Place (UK) Helps Out Family http://nf.smartypantsknowitall.com/2009/07/02/zoes-place-uk-helps-out-family/ http://nf.smartypantsknowitall.com/2009/07/02/zoes-place-uk-helps-out-family/#comments Thu, 02 Jul 2009 16:15:49 +0000 M http://nf.smartypantsknowitall.com/?p=598 The Summers-Mannion family of Teesside, England credits Zoe’s Place, a baby hospice facility, with helping them through the difficulties of caring for a son with NF. The Gazette has their story.

]]> http://nf.smartypantsknowitall.com/2009/07/02/zoes-place-uk-helps-out-family/feed/ 0 June 6: Life After Diagnosis Conference (Boston) http://nf.smartypantsknowitall.com/2009/05/31/june-6-life-after-diagnosis-conference-boston/ http://nf.smartypantsknowitall.com/2009/05/31/june-6-life-after-diagnosis-conference-boston/#comments Sun, 31 May 2009 17:32:15 +0000 M http://nf.smartypantsknowitall.com/?p=554 This is a program intended for parents with children who have been diagnosed. Registration is required.

Check out Zoe’s Best Friend for details.

]]> http://nf.smartypantsknowitall.com/2009/05/31/june-6-life-after-diagnosis-conference-boston/feed/ 0 Feb 7: Illinois NF and NF2 Groups Meeting http://nf.smartypantsknowitall.com/2009/02/05/feb-7-illinois-nf-and-nf2-groups-meeting/ http://nf.smartypantsknowitall.com/2009/02/05/feb-7-illinois-nf-and-nf2-groups-meeting/#comments Thu, 05 Feb 2009 16:37:06 +0000 M http://nf.smartypantsknowitall.com/?p=413 The Midwest chapter of NF, Inc. is holding two planning meetings this Saturday.

NF Action Group (NAG)
10:00 aAM

NF2 Action Committee
12:00 PM

Location: NF, Inc. Midwest’s office
145 S Main
Lombard

]]> http://nf.smartypantsknowitall.com/2009/02/05/feb-7-illinois-nf-and-nf2-groups-meeting/feed/ 0 Dec 6: Michigan Support Group Christmas Party http://nf.smartypantsknowitall.com/2008/12/03/dec-6-michigan-support-group-christmas-party/ http://nf.smartypantsknowitall.com/2008/12/03/dec-6-michigan-support-group-christmas-party/#comments Wed, 03 Dec 2008 16:30:02 +0000 M http://nf.smartypantsknowitall.com/?p=338 December 6 at 2:00 in Hudsonville, MI. Contact the Support Group of West Michigan for more information.

]]> http://nf.smartypantsknowitall.com/2008/12/03/dec-6-michigan-support-group-christmas-party/feed/ 0 Wanted: Parents for Informal Discussion Group (NF Midwest) http://nf.smartypantsknowitall.com/2008/09/29/wanted-parents-for-informal-discussion-group-nf-midwest/ http://nf.smartypantsknowitall.com/2008/09/29/wanted-parents-for-informal-discussion-group-nf-midwest/#comments Mon, 29 Sep 2008 17:18:21 +0000 M http://nf.smartypantsknowitall.com/?p=216 NF, Inc. Midwest is looking for parent volunteers to provide feedback on how to improve and increase the organization’s services. To help, please call their office at (630) 932-8111 or send an email to info@nfmidwest.org.

]]> http://nf.smartypantsknowitall.com/2008/09/29/wanted-parents-for-informal-discussion-group-nf-midwest/feed/ 0 LA NF Support and Action Group http://nf.smartypantsknowitall.com/2008/09/20/la-nf-support-and-action-group/ http://nf.smartypantsknowitall.com/2008/09/20/la-nf-support-and-action-group/#comments Sat, 20 Sep 2008 15:55:14 +0000 M http://nf.smartypantsknowitall.com/?p=165 The NF Action Group for LA
Time: 6:30-8PM
Place: Northridge Hospital
18300 Roscoe Blvd.
Northridge, CA 91328

Remaining meeting dates: 9/22, 10/20, 11/17, 12/15

Agenda:

  • Sept. – Meet n Greet. Walk Recap and Plan Fall NF Awareness Day.
  • Oct. – Meet n Greet. Kick off Recycling Campaign.
  • Nov. – Meet n Greet. Set date for the end of the year Fundraising Dinner. Part of dinner profits to NF.
  • Dec. – Pot Luck, Guest Speaker, Develop Goals for 2009.
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