NF Smarty Pants

Archive for the ‘Support’ Category

The Cape Cod Times features an article about the lessons to be learned from parents of children with chronic illnesses.

Team Izzy organized as a way to support each other, raise funds for NF research, and increase NF awareness. The group is named after 3-year-old Isobelle Mick. The Kalamazoo Gazette has a nice story on the family and their efforts.

The Summers-Mannion family of Teesside, England credits Zoe’s Place, a baby hospice facility, with helping them through the difficulties of caring for a son with NF. The Gazette has their story.

This is a program intended for parents with children who have been diagnosed. Registration is required.

Check out Zoe’s Best Friend for details.

The Midwest chapter of NF, Inc. is holding two planning meetings this Saturday.

NF Action Group (NAG)
10:00 aAM

NF2 Action Committee
12:00 PM

Location: NF, Inc. Midwest’s office
145 S Main
Lombard

December 6 at 2:00 in Hudsonville, MI. Contact the Support Group of West Michigan for more information.

NF, Inc. Midwest is looking for parent volunteers to provide feedback on how to improve and increase the organization’s services. To help, please call their office at (630) 932-8111 or send an email to info@nfmidwest.org.

The NF Action Group for LA
Time: 6:30-8PM
Place: Northridge Hospital
18300 Roscoe Blvd.
Northridge, CA 91328

Remaining meeting dates: 9/22, 10/20, 11/17, 12/15

Agenda:

• Sept. – Meet n Greet. Walk Recap and Plan Fall NF Awareness Day.
• Oct. – Meet n Greet. Kick off Recycling Campaign.
• Nov. – Meet n Greet. Set date for the end of the year Fundraising Dinner. Part of dinner profits to NF.
• Dec. – Pot Luck, Guest Speaker, Develop Goals for 2009.

Kevin Alexander received a personal tour of the new Air Bus 380 aircraft. Kevin has loved flying and airplanes all his life. Through the Make-A-Wish Foundation UK, he received a very special day and a certificate good for five free flying lessons.

The Brandon (Florida) News & Tribune has a story about how the Brandon Community Foundation provides support and assistance to families in need in the Brandon area. The story focuses on a family with a daughter who has NF1 and cancer.