NF Smarty Pants » Personal Stories

Caribou, Maine, Thrift Store Strives to Help Families Coping with Ill Children

Fri, 03 Dec 2010 15:10:29 +0000

Cindy and Christian Johnson started a second-hand store in Maine as a way to raise money for families caring for a sick child. Their own son, Caleb, has NF1 and the Johnsons, thankful for all the help and support that they’ve received over the years, are taking donated items into this store, named The Cubby, and offering them for sale. The money collected will benefit other families in need of assistance.

Criticism of Canadian Health Care for Woman with NF

Thu, 14 Oct 2010 05:53:43 +0000

Ron Corbett writes a scathing editorial about the Canadian health care system’s treatment of Lisa Nancarrow.

Oct 10: TLC Airs Neurofibromatosis Program

Fri, 08 Oct 2010 19:38:26 +0000

My Brand New Face premieres on cable channel TLC this Sunday.

Jessica Stone Continues to Battle NF

Wed, 14 Apr 2010 03:03:30 +0000

Challenges continue to arise for Jessica Stone. Follow Jessica’s journey through her own blog, Life Inspires Me.

Tonderai Mandigumura Ready to Head Home

Sat, 27 Feb 2010 19:46:36 +0000

Tonderai Mandigumura traveled from Zimbabwe to Minnesota to receive surgeries that he couldn’t have in his home country. St. Joseph’s Hospital donated services made everything possible. Now, he’s ready to head home.

Nikirah Goddard’s Retroactive Benefits to Help Others

Mon, 15 Feb 2010 17:42:04 +0000

Nikirah Goodard passed away in 2008, but the retroactive benefits approved to go to her mother will help other children with NF. One of the ways Ms. Goodard intends to pass along the money is by sponsoring a new camper for Camp New Friends each year.

Lisa Nancarrow Fights the Canadian Health Care System

Thu, 10 Dec 2009 15:59:57 +0000

Lisa Nancarrow has a painful and deadly tumor in her abdomen. Her Ontario doctors are out of options. Lisa struggles against her country’s health care system to receive care at the Mayo Clinic in Minnesota.

An Eight Grader in Bus Assault

Wed, 30 Sep 2009 16:48:25 +0000

A dark and horrible story coming out of Washington. Casey Sternitzky was waiting on the bus that takes him to school when two high school boys stepped on and physically assaulted him. Casey suspects that the difficulties resulting from his neurofibromatosis influenced the beating.

The Rentschler Family of Kansas City

Sun, 20 Sep 2009 16:58:24 +0000

The Shawnee Dispatch has a long article about the Rentschler family and their efforts at increasing NF awareness.

Edith Garrett’s Hearing Restored

Thu, 06 Aug 2009 15:32:29 +0000

Read about Edith Garrett’s experience with bevacizumab and how the drug helped her get her hearing back.