NF Smarty Pants

Archive for the ‘Personal Stories’ Category

Cindy and Christian Johnson started a second-hand store in Maine as a way to raise money for families caring for a sick child. Their own son, Caleb, has NF1 and the Johnsons, thankful for all the help and support that they’ve received over the years, are taking donated items into this store, named The Cubby, and offering them for sale. The money collected will benefit other families in need of assistance.

Ron Corbett writes a scathing editorial about the Canadian health care system’s treatment of Lisa Nancarrow.

My Brand New Face premieres on cable channel TLC this Sunday.

Challenges continue to arise for Jessica Stone. Follow Jessica’s journey through her own blog, Life Inspires Me.

Tonderai Mandigumura traveled from Zimbabwe to Minnesota to receive surgeries that he couldn’t have in his home country. St. Joseph’s Hospital donated services made everything possible. Now, he’s ready to head home.

Previous posts:

• MN Hospital Donates Services to Zimbabwe Man
• Tonderai Mandigumura in Minnesota

Nikirah Goodard passed away in 2008, but the retroactive benefits approved to go to her mother will help other children with NF. One of the ways Ms. Goodard intends to pass along the money is by sponsoring a new camper for Camp New Friends each year.

Lisa Nancarrow has a painful and deadly tumor in her abdomen. Her Ontario doctors are out of options. Lisa struggles against her country’s health care system to receive care at the Mayo Clinic in Minnesota.

A dark and horrible story coming out of Washington. Casey Sternitzky was waiting on the bus that takes him to school when two high school boys stepped on and physically assaulted him. Casey suspects that the difficulties resulting from his neurofibromatosis influenced the beating.

The Shawnee Dispatch has a long article about the Rentschler family and their efforts at increasing NF awareness.

Read about Edith Garrett’s experience with bevacizumab and how the drug helped her get her hearing back.