NF Smarty Pants

Archive for the ‘Fundraising’ Category

Christine Scheller ran the New York City Half-Marathon and wrote about her race through a place with so much personal meaning. Christine is a member of the NF Endurance Team.

Deerwood Golf Course
North Tonawanda, NY
Scramble Format

10 am start

Proceeds to benefit Leah Manth and NF, Inc. Northeast

The Bezbatchenko family is organizing a golf classic in honor of their son David. David passed away in February from a brain tumor caused by neurofibromatosis. During a golf outing with his father, the duo hit back-to-back hole in ones. This event hopes to help the cause with the funds benefiting the Children’s Tumor Foundation.

Eamon O Murchu and 11other cyclists rode 435 miles over 4 days as they raised money for the Neurofibromatosis Association of Ireland.

Ashley’s Ride, a motorcycle benefit, drew hundreds of riders last year. This year, the ride kicks off at 10:00 in Mancelona, MI.

Congratulations to the hard working people who put together the Great Steps walk in Illinois. This year’s walk raised $140,000 for NF research and support programs. You can see photos from the event here.

Greg, a 15-year-old with NF, is just one of the people the Daily Record wants to send to camp through their Operation Sunshine program. The money raised will turn into camperships for Camp Speers-Eljabar YMCA in the Pennsylvania Poconos.

Lauren Loose is the daughter of a football coach at Lafayette College. Neurofibromatosis is just one of Lauren’s diagnoses. The Loose family started a charity football camp that draws upon the highly lucrative and competitive world of NCAA football recruiting to raise money for research.

In the meantime, the NCAA is trying to make things fairer with some new rules. One of these rules is inadvertently affecting the family’s fundraising efforts.

Sports Illustrated has a very interesting article on the situation.

Read an account of the most recent camp in May at Kean University’s site.

It’s the companion event to the original Great Steps for NF in Naperville, IL. It’ll be the same great spirit, same great goal! More information here.

Location: Penguin Park in Kansas City

Please visit the walk’s web home.