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NF Smarty Pants

A collection of the latest news, events, and information about Neurofibromatosis

Archive for the ‘Fundraising’ Category

Team Tommy Fights NF with Cupcakes

Friday, February 5th, 2010

Team Tommy has launched Operation Valentine. The friends and family of 4-year-old Tommy Joffrion have banded together to make and deliver cupcakes this Valentines Day.

If you are in or around Leominster, MA, how about sending some good-cause cupcakes to a loved one? They stop taking orders on February 10 so check them out quickly! The Leominster Champion has some great photos.

Ride in a Rolls Royce For A Night

Thursday, February 4th, 2010

There’s a charity auction where the winner will get a chauffeured Rolls Royce Silver Cloud for a night. Come on, Chicago people. How cool is that!

NF Event in Madison, WI, Looking for Volunteers

Sunday, December 20th, 2009

NF, Inc. Midwest’s Great Steps for NF is proving to be a very popular fundraising model. The original event began in Naperville, IL, and grew to include a second charity walk in Effingham, IL. Now organizers in Madison, WI, want to add onto the tradition.

If you are in the Madison area and would like to get involved, please contact the main office of NF, Inc. Midwest.

Aaron Posner Dedicates Bar Mitzvah to NF Research

Sunday, October 18th, 2009

Instead of getting the usual presents at his bar mitzvah, Aaron Posner will raise money for NF research. He is asking for donations to the Washington University Neurofibromatosis Center in St. Louis.

October 8: Big Shots And Little Stars (Cleveland)

Monday, October 5th, 2009

Flashes of Hope is joining forces with the Cavaliers Better Halves, a charity organization run by the wives of the Cleveland Cavaliers basketball team, to put on Big Shots and Little Stars. This fashion show and auction will benefit Flashes of Hope and the Children’s Tumor Foundation.

October 3: Saugatuck Cup Fishing Tournament (CT)

Thursday, September 24th, 2009

The first annual Saugatuck Cup will benefit the Children’s Tumor Foundation and the Memorial Sloan Kettering Pediatric Cancer Center.

8:00-3:30 in Westport, Connecticut

The Rentschler Family of Kansas City

Sunday, September 20th, 2009

The Shawnee Dispatch has a long article about the Rentschler family and their efforts at increasing NF awareness.

Shipley’s Choice Swim-A-Thon Beats Last Year’s Numbers

Wednesday, September 16th, 2009

Last year, the Shipley’s Choice Swim-a-thon held its most successful event ever…

That is, until this year’s Swim-a-thon finished. The swimmers coming out to support Matthew Freeman and NF, Inc. Mid-Atlantic traveled over 78 miles in the water and raised over $18,000.

Team Izzy of Michigan

Tuesday, September 15th, 2009

Team Izzy organized as a way to support each other, raise funds for NF research, and increase NF awareness. The group is named after 3-year-old Isobelle Mick. The Kalamazoo Gazette has a nice story on the family and their efforts.

September 20: Steps 2 Cure NF (Woburn, MA)

Monday, September 14th, 2009

This run/walk fundraiser starts at 8:45 am on Sunday. Steps 2 Cure NF offers a choice between the 4 mile road race and the 2 mile health walk.