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NF Smarty Pants

A collection of the latest news, events, and information about Neurofibromatosis

Archive for the ‘Fundraising’ Category

UK National Doodle Day

Wednesday, February 24th, 2010

It’s that time of year again. March 5 is the UK’s National Doodle Day.

Cupid’s Undie Run Brings Exposure to NF

Sunday, February 14th, 2010

By all accounts, yesterday’s Cupid’s Undie Run was a very successful event. The snow and cold of Washington DC didn’t stop the runners from making their loop around the Capitol building. Pictures of the event are available at the DCist. The fundraiser benefited the Children’s Tumor Foundation.

Illinois Walking Teams Raise Funds For Great Steps

Tuesday, February 9th, 2010

Walking teams have a great time at NF, Inc. Midwest’s Great Steps events. Team pride, friendly competition, and great prizes drive each team’s fund-raising efforts. If you are in the area, please consider supporting these events:

  • Feb 15The A Team hosts a night of fun at Jump!Zone (6374 W Howard, Niles). 6:00 to 8:00 p.m. $15 for each child ages 2 and up. Adults are free.
  • Feb 15Jacob’s Warriors invite you to eat wings on this day. Bring this ticket to Buffalo Wild Wings (1550 Douglas Road, Oswego) and 15% of your order will be donated.
  • Feb 204Kate is going bowling! Everything kicks off at 9:30 p.m. at the Orland Bowl (8601 W 159th Street, Orland Park). $35 per person for 4 games of bowling and food. Call Vikki (708-829-0718) to register.

Team Tommy Fights NF with Cupcakes

Friday, February 5th, 2010

Team Tommy has launched Operation Valentine. The friends and family of 4-year-old Tommy Joffrion have banded together to make and deliver cupcakes this Valentines Day.

If you are in or around Leominster, MA, how about sending some good-cause cupcakes to a loved one? They stop taking orders on February 10 so check them out quickly! The Leominster Champion has some great photos.

Ride in a Rolls Royce For A Night

Thursday, February 4th, 2010

There’s a charity auction where the winner will get a chauffeured Rolls Royce Silver Cloud for a night. Come on, Chicago people. How cool is that!

NF Event in Madison, WI, Looking for Volunteers

Sunday, December 20th, 2009

NF, Inc. Midwest’s Great Steps for NF is proving to be a very popular fundraising model. The original event began in Naperville, IL, and grew to include a second charity walk in Effingham, IL. Now organizers in Madison, WI, want to add onto the tradition.

If you are in the Madison area and would like to get involved, please contact the main office of NF, Inc. Midwest.

Aaron Posner Dedicates Bar Mitzvah to NF Research

Sunday, October 18th, 2009

Instead of getting the usual presents at his bar mitzvah, Aaron Posner will raise money for NF research. He is asking for donations to the Washington University Neurofibromatosis Center in St. Louis.

October 8: Big Shots And Little Stars (Cleveland)

Monday, October 5th, 2009

Flashes of Hope is joining forces with the Cavaliers Better Halves, a charity organization run by the wives of the Cleveland Cavaliers basketball team, to put on Big Shots and Little Stars. This fashion show and auction will benefit Flashes of Hope and the Children’s Tumor Foundation.

October 3: Saugatuck Cup Fishing Tournament (CT)

Thursday, September 24th, 2009

The first annual Saugatuck Cup will benefit the Children’s Tumor Foundation and the Memorial Sloan Kettering Pediatric Cancer Center.

8:00-3:30 in Westport, Connecticut

The Rentschler Family of Kansas City

Sunday, September 20th, 2009

The Shawnee Dispatch has a long article about the Rentschler family and their efforts at increasing NF awareness.