NF Smarty Pants

Archive for the ‘Education’ Category

The Children’s Tumor Foundation is holding its National Patient and Family Medical Symposium from April 3rd through the 5th in Washington DC. Please click on the link for more details and registration information.

Dr. Thomas Roland and Dr. William Shapiro will give a presentations on NF2 hearing issues in New York tomorrow. Please see the details at the NF2 Crew’s page and RSVP to attend.

Rick Guidotti is a professional photographer from New York. In 1998, he founded Positive Exposure. This not-for-profit organization seeks to present the beauty and variety of genetic diversity.

Rick was at the NF, Inc. Midwest Symposium in October of 2008. His wonderful portraits are available for viewing on his website.

Irving Bible Church
2435 Kinwest Parkway
Irving, TX 75063

The registration deadline is October 24. This symposium is presented free of charge.

For more information, please access the pdf version of the brochure.

NF, Inc. Mid-Atlantic’s 2008 Symposium will be held at the Hershey Medical Center in Hershey, PA. The registration form is available on their website. Program elements include:

• “NF-1, NF-2, Schwannomatosis” Roger Ladda, M.D., Hershey Children’s Hospital
• “Medical Management of NF-2” Jonas Sheehan, M.D., Hershey Medical Center
• “Removal of Small Tumors” Rogerio Neves, M.D., Ph.D., Hershey Medical Center
• “Peripheral Nerve Tumors” Kimberly Harbaugh, M.D., Hershey Medical Center
• “NF Research at NIH” Doug Stewart, M.D., Nat’l Human Genome Research Institute
• “NF Research at Hershey” Kimberly Harbaugh, M.D., Hershey Medical Center
• “Learning Disabilities & NF” Elana Farace, Ph.D., Hershey Medical Center“Health Insurance” Paul Mendelsohn, NF, Inc.-Mid-Atlantic, Lanham, Maryland

NF, Inc. Midwest’s Annual Symposium has released its line-up for the 2008 conference. The brochure and registration form are both available for downloads as PDF files from their website.

Saturday, October 18
8:00 am – 4:00 pm

McDonald’s Hamburger University
2815 Jorie Blvd.
Oak Brook, IL

Topics include:

• Positive Exposure “Celebrating the Differences” (Rick Guidotti)
• Neurofibromatosis Overview
• SSDI, SSI, Medicaid and Medicare Overview (James M. Donner, JD)
• Neurofibromas: A Closer Look (James Tonsgard, MD)
• NF-1 Research Update: How Neurofibromas Form (Nancy Ratner, MD)
• NF Type 1 in Children (Robert Listernick, MD)
• Treatment Approaches to NF2 (James Tonsgard, MD)
• Approach to Vestibular Nerve Tumors and Hearing in Patients with NF-2 (Miriam Redleaf, MD)

Date: Saturday, October 11, 2008

Time:
8:00 Registration Check In
8:30 Program Starts
5:00 Program Ends

Cost: $25.00 per adult and $5.00 per kid attending the kids club

Place:
Univ. of Calif. San Francisco
Laurel Heights Conference Center
333 California St.
San Francisco, California

Parking: $5 Per Car in Laurel Heights Conference Center, Free parking available in lot left of California Street (entrance at Walnut Street)

The registration deadline is August 18. For a list of speakers and events, please see the NF, Inc. California’s information page.

In 2005, Illinois NF, Inc. (now NF, Inc. Midwest) presented a breakout session at their 2005 fall symposium featuring Dr. Derald Brackmann. The transcript of his talk is now available at the NF, Inc. site.

In five days, the Camp Sunshine will welcome its Children’s Brain Tumor Foundation campers for July. Thanks to Jenna’s Rainbow, all forty-two families will participate in the week-long camp free of charge.

CBTF will hold another camp in October. If your family is interested, please see their information page.

NF, Inc.-California has a full day’s worth of events scheduled for July 12. The beach, dinner, a free Q and A with Dr. Vic Riccardi, and a musical premiere will take you from the morning through the night.