NF Smarty Pants » Children

Manny Evans’s Helicopter Ride

Thu, 01 Jul 2010 04:51:55 +0000

Manny Evans is 7 years old and lives at the Cincinnati Children’s Hospital full time. His NF causes so many complications that life outside the hospital is just not possible.

Friends of the family, many of the hospital staff, and community members pitch in to help Manny have memorable outings whenever possible.

Nikirah Goddard’s Retroactive Benefits to Help Others

Mon, 15 Feb 2010 17:42:04 +0000

Nikirah Goodard passed away in 2008, but the retroactive benefits approved to go to her mother will help other children with NF. One of the ways Ms. Goodard intends to pass along the money is by sponsoring a new camper for Camp New Friends each year.

Jeneece Edroff To Participate In Canada’s Olympic Torch Relay

Thu, 08 Oct 2009 18:28:49 +0000

Jeneece Edroff, a 15 year old with neurofibromatosis, will light Victoria’s cauldron and be a torchbearer in Canada’s torch relay festivities. Jeneece has raised over $1 million for research and support, and has her own charity organization called Jeneece Place.

Dallas Cowboys Kicker Nick Folk Competes For NF

Thu, 01 Oct 2009 14:00:00 +0000

Nick Folk, kicker for the Dallas Cowboys football team, is teaming up with the Children’s Tumor Foundation to raise funds and awareness. For every extra point this season, Folk will donate $25 to CTF. He will also donate $75 for every field goal. You can also get involved.

Parents Advising Parents

Tue, 29 Sep 2009 17:43:27 +0000

The Cape Cod Times features an article about the lessons to be learned from parents of children with chronic illnesses.

July 12-18: Camp New Friends

Tue, 16 Jun 2009 02:25:57 +0000

Camp New Friends is a summer camp for children with NF. Counselors and doctors will be on site to make sure that all campers are accommodated.

Many of the regional NF, Inc. offices have access to sponsorship money so don’t let financial fears prevent your child’s great adventure. Even though it is past the printed sign-up date, it never hurts to give them a call.

Diagnosing Difficulties for Stanley Badia in Kenya

Wed, 03 Jun 2009 14:29:54 +0000

Kenya’s Daily Nation is reporting on the case of Stanley Badia. From the newspaper accounts, no one can be sure the eight year old has neurofibromatosis, but the confusion and frustrations felt by the family must be familiar to many NF families around the world.

Today, there are two follow-up stories.

May 23: NF Fly Day (Pittsburg, CA)

Wed, 20 May 2009 16:40:07 +0000

The Diablo Valley Radio Flyers is hosting this event. Children attending will get to fly radio-controlled airplanes with an experienced adult mentor. How fun is that!?

Food, drinks, and entertainment will also be provided.

Download an informational flyer at NF, Inc. California.

Karen McDade Invents Cookie to Benefit Make-A-Wish

Mon, 04 May 2009 16:28:54 +0000

Karen McDade is a third-grader with NF-2. Her cookie, the Chocklet Heaven, was chosen by Otis Spunkmeyer as the winner of a cookie creation contest.

The company will produce Karen’s cookie and sell it in schools around the country. Some of the proceeds will go to the Make-A-Wish Foundation.

Irish Family Feels the Effects of Government Cutbacks

Mon, 23 Mar 2009 19:17:44 +0000

As the Irish government cuts programs and school support, children with special needs are feeling the effects of decreased services.

The Limerick Post reports on the struggle of a family with two daughters who have special needs. One is diagnosed with NF.