NF Smarty Pants

Archive for the ‘Awareness’ Category

At 7:00 on the Speed Channel tonight, you can watch John Tancredi and DILYSI (Drive It Like You Stole It!) Racing take the track in the Grand-Am Rolex Series Crown Royal 200. John will be driving the Children’s Tumor Foundation racecar. Click on the link to see a picture.

Ashley’s Ride, a motorcycle benefit, drew hundreds of riders last year. This year, the ride kicks off at 10:00 in Mancelona, MI.

I just discovered that the Children’s Tumor Foundation has started their own blog.

Due to rough weather, the NF Family Day event at the Kane County Cougars minor league baseball game has been rescheduled. If you couldn’t make it last Friday, you can still get tickets for this Friday’s event. Please see the NF Inc. Midwest home page.

National Doodle Day has begun in the United States.

The doodles are available for bidding on eBay until the 17th.

Since I picked a favorite during the British campaign, I’ll designate a favorite for this one too.

I’m going with Matthew Perry’s contribution because it captures the spirit of a doodle and of the NF effort.

Last minute tickets are available from NF, Inc. Midwest for the May 15 Kane County Cougars minor league baseball game. Everyone under 17 gets in free, but they still need to register.

5:30-7:00 picnic (catered) in the reserved outfield section
6:30 game start
post-game fireworks

The special discounted price of $15 per ticket is available to adults within an NF family. Supporter tickets are $25.

The organization asks you to wear red and make a statement.

Don’t forget that May is National Neurofibromatosis Awareness Month. Keep your eyes open for events by all the national and regional organizations. And spread the word!

The Steiner Family (Jodie, Chaun, Braeden, and Bronson) are featured in the Toledo Free Press.

The Staten Island Advance has a great extended article on the White Family and neurofibromatosis.

The Midwest chapter of NF, Inc. is holding two planning meetings this Saturday.

NF Action Group (NAG)
10:00 aAM

NF2 Action Committee
12:00 PM

Location: NF, Inc. Midwest’s office
145 S Main
Lombard