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NF Smarty Pants

A collection of the latest news, events, and information about Neurofibromatosis

Archive for the ‘Awareness’ Category

March 13: St. Patrick’s Day Parade in Naperville, IL

Thursday, March 4th, 2010

NF, Inc. Midwest is marching in the West Suburban St. Patrick’s Day Parade. Please let them know if you would like to join them.

The NF Extreme Team To Marathon in Antarctica

Thursday, February 25th, 2010

Would you run 26 miles in Antarctica? The NFXtreme Team will.

The Rentschler Family of Kansas City

Sunday, September 20th, 2009

The Shawnee Dispatch has a long article about the Rentschler family and their efforts at increasing NF awareness.

Team Izzy of Michigan

Tuesday, September 15th, 2009

Team Izzy organized as a way to support each other, raise funds for NF research, and increase NF awareness. The group is named after 3-year-old Isobelle Mick. The Kalamazoo Gazette has a nice story on the family and their efforts.

The Children’s Tumor Foundation Racecar Debuts Tonight

Friday, August 7th, 2009

At 7:00 on the Speed Channel tonight, you can watch John Tancredi and DILYSI (Drive It Like You Stole It!) Racing take the track in the Grand-Am Rolex Series Crown Royal 200. John will be driving the Children’s Tumor Foundation racecar. Click on the link to see a picture.

July 25: Ashley’s Ride in Mancelona, MI

Sunday, July 19th, 2009

Ashley’s Ride, a motorcycle benefit, drew hundreds of riders last year. This year, the ride kicks off at 10:00 in Mancelona, MI.

May 22: Rescheduled NF Family Day

Tuesday, May 19th, 2009

Due to rough weather, the NF Family Day event at the Kane County Cougars minor league baseball game has been rescheduled. If you couldn’t make it last Friday, you can still get tickets for this Friday’s event. Please see the NF Inc. Midwest home page.

National Doodle Day USA

Saturday, May 9th, 2009

National Doodle Day has begun in the United States.

The doodles are available for bidding on eBay until the 17th.

Since I picked a favorite during the British campaign, I’ll designate a favorite for this one too.

I’m going with Matthew Perry’s contribution because it captures the spirit of a doodle and of the NF effort.

May 15: NF Family Day at the Kane County Cougars Baseball Game

Thursday, May 7th, 2009

Last minute tickets are available from NF, Inc. Midwest for the May 15 Kane County Cougars minor league baseball game. Everyone under 17 gets in free, but they still need to register.

5:30-7:00 picnic (catered) in the reserved outfield section
6:30 game start
post-game fireworks

The special discounted price of $15 per ticket is available to adults within an NF family. Supporter tickets are $25.

The organization asks you to wear red and make a statement.