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NF Smarty Pants

A collection of the latest news, events, and information about Neurofibromatosis

Archive for February, 2010

Tonderai Mandigumura Ready to Head Home

Saturday, February 27th, 2010

Tonderai Mandigumura traveled from Zimbabwe to Minnesota to receive surgeries that he couldn’t have in his home country. St. Joseph’s Hospital donated services made everything possible. Now, he’s ready to head home.

Previous posts:

The NF Extreme Team To Marathon in Antarctica

Thursday, February 25th, 2010

Would you run 26 miles in Antarctica? The NFXtreme Team will.

UK National Doodle Day

Wednesday, February 24th, 2010

It’s that time of year again. March 5 is the UK’s National Doodle Day.

Nikirah Goddard’s Retroactive Benefits to Help Others

Monday, February 15th, 2010

Nikirah Goodard passed away in 2008, but the retroactive benefits approved to go to her mother will help other children with NF. One of the ways Ms. Goodard intends to pass along the money is by sponsoring a new camper for Camp New Friends each year.

Cupid’s Undie Run Brings Exposure to NF

Sunday, February 14th, 2010

By all accounts, yesterday’s Cupid’s Undie Run was a very successful event. The snow and cold of Washington DC didn’t stop the runners from making their loop around the Capitol building. Pictures of the event are available at the DCist. The fundraiser benefited the Children’s Tumor Foundation.

Illinois Walking Teams Raise Funds For Great Steps

Tuesday, February 9th, 2010

Walking teams have a great time at NF, Inc. Midwest’s Great Steps events. Team pride, friendly competition, and great prizes drive each team’s fund-raising efforts. If you are in the area, please consider supporting these events:

  • Feb 15The A Team hosts a night of fun at Jump!Zone (6374 W Howard, Niles). 6:00 to 8:00 p.m. $15 for each child ages 2 and up. Adults are free.
  • Feb 15Jacob’s Warriors invite you to eat wings on this day. Bring this ticket to Buffalo Wild Wings (1550 Douglas Road, Oswego) and 15% of your order will be donated.
  • Feb 204Kate is going bowling! Everything kicks off at 9:30 p.m. at the Orland Bowl (8601 W 159th Street, Orland Park). $35 per person for 4 games of bowling and food. Call Vikki (708-829-0718) to register.

Team Tommy Fights NF with Cupcakes

Friday, February 5th, 2010

Team Tommy has launched Operation Valentine. The friends and family of 4-year-old Tommy Joffrion have banded together to make and deliver cupcakes this Valentines Day.

If you are in or around Leominster, MA, how about sending some good-cause cupcakes to a loved one? They stop taking orders on February 10 so check them out quickly! The Leominster Champion has some great photos.

Ride in a Rolls Royce For A Night

Thursday, February 4th, 2010

There’s a charity auction where the winner will get a chauffeured Rolls Royce Silver Cloud for a night. Come on, Chicago people. How cool is that!

NF Smarty Pants Hacked!

Thursday, February 4th, 2010

Thank you, Diana Haberkamp of NF, Inc. Midwest, for letting me know that this site was hacked. I hope no one was spirited away to somewhere really gross. I believe I have cleared the malicious code, and I hope everything is back to normal now.