NF Smarty Pants

Archive for December, 2009

NF, Inc. Midwest’s Great Steps for NF is proving to be a very popular fundraising model. The original event began in Naperville, IL, and grew to include a second charity walk in Effingham, IL. Now organizers in Madison, WI, want to add onto the tradition.

If you are in the Madison area and would like to get involved, please contact the main office of NF, Inc. Midwest.

Kyle Dobbins is legally blind due to his NF. Scientists in China are using a procedure involving stem cells to restore sight. Read more details from KGET.

Led by the Genetics Department of the University of Birmingham, researchers found that NF1 and Legius syndrome have very similar symptoms, which may lead to misdiagnosis.

• read the Journal of the American Medical Association abstract
• read an easier-to-understand article

Lisa Nancarrow has a painful and deadly tumor in her abdomen. Her Ontario doctors are out of options. Lisa struggles against her country’s health care system to receive care at the Mayo Clinic in Minnesota.

The Canadian Press has a nice, lengthly educational article on NF.

A group of scientists studying mummies have determined and diagnosed a wide range of maladies. One ancient Egyptian is likely to have had NF. The disease is likely the cause of death.