NF Smarty Pants

Archive for September, 2009

A dark and horrible story coming out of Washington. Casey Sternitzky was waiting on the bus that takes him to school when two high school boys stepped on and physically assaulted him. Casey suspects that the difficulties resulting from his neurofibromatosis influenced the beating.

The Cape Cod Times features an article about the lessons to be learned from parents of children with chronic illnesses.

NF, Inc. Mid-Atlantic is celebrating its 30 years of service. The anniversary gala will take place at the Marriott in Bethesda, MD. Please go to their website for more information and to secure tickets.

The first annual Saugatuck Cup will benefit the Children’s Tumor Foundation and the Memorial Sloan Kettering Pediatric Cancer Center.

8:00-3:30 in Westport, Connecticut

The Shawnee Dispatch has a long article about the Rentschler family and their efforts at increasing NF awareness.

It looks like we may be broadcasting again.

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Last year, the Shipley’s Choice Swim-a-thon held its most successful event ever…

That is, until this year’s Swim-a-thon finished. The swimmers coming out to support Matthew Freeman and NF, Inc. Mid-Atlantic traveled over 78 miles in the water and raised over $18,000.

Team Izzy organized as a way to support each other, raise funds for NF research, and increase NF awareness. The group is named after 3-year-old Isobelle Mick. The Kalamazoo Gazette has a nice story on the family and their efforts.

This run/walk fundraiser starts at 8:45 am on Sunday. Steps 2 Cure NF offers a choice between the 4 mile road race and the 2 mile health walk.