NF Smarty Pants

Archive for June, 2009

Location: Penguin Park in Kansas City

Please visit the walk’s web home.

From the press release:

Researchers funded by the National Institute of Neurological Disorders and Stroke (NINDS) have found that an organ transplant drug might one day be used to treat meningioma, a type of brain tumor. The drug also could be used to treat neurofibromatosis type 2, a rare disease associated with meningiomas and other benign tumors of the nervous system.

Read more at the NINDS website.

Kenya’s Daily Nation is reporting on the case of Stanley Badia. From the newspaper accounts, no one can be sure the eight year old has neurofibromatosis, but the confusion and frustrations felt by the family must be familiar to many NF families around the world.

Today, there are two follow-up stories.

• consulting a plastic surgeon
• pledges of support

Run with Me … for NF is organized by the Manitoba Neurofibromatosis Support Group. The run starts at 10:00 am at the Minnedosa Beach Pavilion. Please register online at their website.