NF Smarty Pants

Archive for May, 2009

17th Annual Red McCombs NF Foundation Golf Tournament

The Quarry Golf Club

Download the sponsorship/donation/registration form here (PDF file).

National Doodle Day has begun in the United States.

The doodles are available for bidding on eBay until the 17th.

Since I picked a favorite during the British campaign, I’ll designate a favorite for this one too.

I’m going with Matthew Perry’s contribution because it captures the spirit of a doodle and of the NF effort.

Last minute tickets are available from NF, Inc. Midwest for the May 15 Kane County Cougars minor league baseball game. Everyone under 17 gets in free, but they still need to register.

5:30-7:00 picnic (catered) in the reserved outfield section
6:30 game start
post-game fireworks

The special discounted price of $15 per ticket is available to adults within an NF family. Supporter tickets are $25.

The organization asks you to wear red and make a statement.

The first annual “Friends of the Codogans” run will take place on May 16 at the Rockland High School. For registration information, please follow this link.

Fort Bend Family YMCA
4433 Cartwright Road
Missouri City, TX 77459

Friday, May 8th 2009 6:30 – 9:00 p.m.
$20 registration

Please see the Texas Neurofibromatosis Foundation’s website for more details.

Karen McDade is a third-grader with NF-2. Her cookie, the Chocklet Heaven, was chosen by Otis Spunkmeyer as the winner of a cookie creation contest.

The company will produce Karen’s cookie and sell it in schools around the country. Some of the proceeds will go to the Make-A-Wish Foundation.

Jamie Farrow recently had a NF 1 related brain tumor removed. To get to it, doctors only had to remove a piece of skull about two inches in diameter. These less invasive surgeries lessen the post-operation scarring and recovery times. Read more about this story at the Star News website.

Don’t forget that May is National Neurofibromatosis Awareness Month. Keep your eyes open for events by all the national and regional organizations. And spread the word!