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NF Smarty Pants

A collection of the latest news, events, and information about Neurofibromatosis

Archive for May, 2009

June 6: Life After Diagnosis Conference (Boston)

Sunday, May 31st, 2009

This is a program intended for parents with children who have been diagnosed. Registration is required.

Check out Zoe’s Best Friend for details.

June 6: Great Steps for NF Walk (Naperville, IL)

Saturday, May 30th, 2009

Location: Naperville Riverwalk

Breakfast and lunch are provided. There will be a lot of fun, games, and raffles!

Please visit the walk’s homepage.

May 30: Pennies from Heaven (Foxboro)

Tuesday, May 26th, 2009

If you are out and about this Saturday in Foxboro, MA, be on the lookout for volunteers collecting spare change. Pennies from Heaven is organized and carried out by two local high school students, Michaela Bero and David Santos.

Children’s Tumor Foundations NF Forum Recaps Are Available

Sunday, May 24th, 2009

The synopses for the April 2009 NF Forum sessions are available at CTF’s website.

Updated List of NF Clinical Trials

Saturday, May 23rd, 2009

As NF Awareness Month enters into its final week, why not check out what clinical trials are going out there?

May 31: Brian Simpson’s Salon Hair Cut-a-thon (Middleton, MA)

Friday, May 22nd, 2009

Get your spring hair cut at Brian Simpson’s Salon on the 31st. The Hair Cut-a-thon is in honor of Stephan LeColst and benefits NF, Inc. Northeast.

152 South Main Street, Suite D
Middleton, MA

Click here for more details.

May 23: Vancouver Area NF Info Day

Thursday, May 21st, 2009

The annual BCNF Member and NF Info Meeting

11:30am – 4pm
Richmond Best Western Hotel

Please register using the link above so they can have enough food on-hand for everyone.

May 23: NF Fly Day (Pittsburg, CA)

Wednesday, May 20th, 2009

The Diablo Valley Radio Flyers is hosting this event. Children attending will get to fly radio-controlled airplanes with an experienced adult mentor. How fun is that!?

Food, drinks, and entertainment will also be provided.

Download an informational flyer at NF, Inc. California.

May 22: Rescheduled NF Family Day

Tuesday, May 19th, 2009

Due to rough weather, the NF Family Day event at the Kane County Cougars minor league baseball game has been rescheduled. If you couldn’t make it last Friday, you can still get tickets for this Friday’s event. Please see the NF Inc. Midwest home page.

Run4NF Events in May

Monday, May 18th, 2009

There are a lot of runs taking place in the second half of NF Awareness Month. Please take a look at the Run4NF website and see if any are in your community. What better way is there to enjoy a lovely spring weekend than going out and supporting the runners?