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NF Smarty Pants

A collection of the latest news, events, and information about Neurofibromatosis
July 4th, 2010

July 10: Love for Leanna, Woodland, CA

3 mile walk and 3 mile run fundraiser. Please visit the Love for Leanna website for more information.

Douglass Jr. High Track
525 Granada St.
Woodland, CA

June 30th, 2010

Manny Evans’s Helicopter Ride

Manny Evans is 7 years old and lives at the Cincinnati Children’s Hospital full time. His NF causes so many complications that life outside the hospital is just not possible.

Friends of the family, many of the hospital staff, and community members pitch in to help Manny have memorable outings whenever possible.

June 29th, 2010

Karen Peluso Interviewed in Boston Herald

Karen Peluso, executive director of NF, Inc. Northeast, was interviewed by the Boston Herald about the state of NF support and research in her area.

June 28th, 2010

Former Boston Red Sox Dwight Evans Shares Family History

Dwight “Dewey” Evans, former Boston Red Sox standout, shares the medical history that he and his family have kept out of the limelight for so long.

April 16th, 2010

NF Endurance Team Members at the Boston Marathon

John Wesolowski and daughter AnnMarie will run the Boston Marathon as part of the NF Endurance Team and in honor of Celia LaBarbera.

April 15th, 2010

The Hay Family Seeks to Raise Awareness in Australia

Charlie Hay and his parents realized after his diagnosis that most of Australia’s NF support seems to be centered in Sydney. The family hopes to start organizing and raising awareness closer to home. Strathfieldsaye, Australia, is closer to the city of Victoria in the southeast.

April 14th, 2010

Running a Marathon in Antarctica

The NFXtreme Team is back from their trek to, and over 26 miles of, Antarctica.

April 13th, 2010

Jessica Stone Continues to Battle NF

Challenges continue to arise for Jessica Stone. Follow Jessica’s journey through her own blog, Life Inspires Me.

March 4th, 2010

March 13: St. Patrick’s Day Parade in Naperville, IL

NF, Inc. Midwest is marching in the West Suburban St. Patrick’s Day Parade. Please let them know if you would like to join them.